National Genetic Heart Disease Registry

The National Genetic Heart Disease Registry offers people with genetic heart disease a simple yet effective way to help researchers save and improve lives.

Since 2007, researchers have been collecting valuable information on Australians living with a genetic heart disease. This information is then used to identify patterns and issues that have the potential to improve patient care.

 

Enrolling is easy. Simply log on to www.heartregistry.org.au (or email
registry@centenary.org.au) for more information. You’ll also find helpful patient
resources on this website.

You can also connect with Registry researchers and other patients and families
via Facebook (search for National Genetic Heart Disease Registry) and Twitter
(@CSHeartResearch).